Childkind’s Take Charge, Medically Based Parent Education and Training program helps families be successful at managing the care of their children with complex health care needs:
1. Childkind extends care training into the home, observing a parent’s ability and providing instruction and skill reinforcement Childkind teaches the parent about the child’s diagnosis using language appropriate to their culture and literacy; providing feedback to the child’s medical team.
2. Childkind promotes and develops a strong partnership between the child’s medical team and the child’s parent. Social, educational, economic, racial, and cultural barriers nearly always impedes affective effective transfer of information between medical providers and the caregivers.
3. By the end of their participation with Childkind’s Take Charge program, parents will be able to manage their child’s care and appointment schedule, manage services, and have the basic ability to navigate the healthcare/support system.
4. Childkind works with the family to establish goals related to the barriers that hinder family sustainability. Childkind addresses housing issues, service access, transportation, school-based programs, income, and more. At the heart of our program is a resource tool parent’s will use to organize medical records, eligibility documents, community-based programs, medical team contact information, and more. The case manager and nurse teach parents to use the tool as a critical resource which, over time will help parents learn to be their own case managers.
5. Childkind helps parents learn to understand how best to nurture their child's psychological well-being when physical disabilities are significant. Childkind helps the parent through the natural grieving process and to appreciate the strengths and abilities of their child.
Through Childkind’s work, the medical community can deliver healthcare services to children with medical complexity more effectively. Provider staff better appreciate the inherent strengths of a low-income family managing complex regimens of care and they become more supportive of efforts to cross the cultural and linguistic divide between themselves and their patients.
Over time Childkind is developing data on common adverse social determinants that affect all children with medical complexity and their families. Childkind shares this information with health related advocacy groups so that policy makers better understand the negative impact these determinants have.