How can we improve the quality of life of 500,000 children living with complex, chronic medical conditions? The solution is EASY!!! Bring palliative care to the community and not just in the hospital!!! Children are living every day in their homes and are not necessarily admitted to the hospital. We need to integrate palliative care, which will focus on the child's physical, emotional, psychosocial, and spiritual well-being in the community. It is not just about medicine, but integrating creative arts (yoga, music, art, karate), integrative therapies (massage, meditation, reiki), parent support groups, sibling events, family education (infant massage classes), and pet therapy into the child's plan of care, which will focus on the whole child. Magnolia Pediatrics is the first private practice in the country focusing on palliative care for children. It is located in Rhode Island, and its mission to provide the best quality of life for any child living with a complex, chronic and/or life-limiting condition. Magnolia Pediatrics will provide care that is meaningful and will foster the child and family’s hopes and will provide an extra layer of care, along with the other medical providers, to support the child and family’s emotional, social, spiritual, and physical needs. There is no cost to the family because a parent should not have to pay to improve their child's quality of life.
Magnolia offers weekly events for all families, including families who are not patients of the practice. We offer monthly music therapy, creative arts and crafts, yoga, reiki, massage, meditation, storytelling, parent support group, video gaming club, karate, and pet therapy during every event.
To provide some background information, I am a doctorally prepared pediatric nurse practitioner board certified in Primary Care Pediatrics, Advanced Hospice and Palliative Nursing, and Pain Management. I have 20 years of experience caring for children with complex chronic conditions, such as cancer, cystic fibrosis, Duchenne muscular dystrophy, spinal muscular atrophy, lissencephaly, Trisomy 18, and mitochondrial diseases. Prior to creating Magnolia Pediatrics, I worked as the consulting pediatric nurse practitioner in palliative and end-of-life at Notre Dame Pediatric Palliative Program in Worcester, MA. I was also instrumental in the development of the Pediatric Palliative Care Program at Hasbro Children’s Hospital in Providence, RI. In addition, I have worked on the Pain Team at Boston Children’s Hospital and at Memorial Sloan-Kettering Cancer Center in New York, NY.